I've been off work now for 7 weeks and will continue to be off work while I start my new treatment plan. If this does not work, we are considering Radiotherapy.
I will still be on Sandostatin (lower dose 40mg every 4weeks instead of 60mg) and will be introducing Somavert daily injections starting at the lowest dose 10mg and see how that works???? I really thought that the increase of Sando to 60mg was going to do the trick but sadly no. I have been off work (off and on now) for approximately 4 consecutive years because of my active Acromegaly.
Hopefully, this time around, with this new treatment plan, I will see/feel long lasting results where I can go weeks/months/maybe years without returning symptoms!!!
Thinking of all you,
New Clinical Trial: ORAL ocreotide!
4 weeks ago