tag:blogger.com,1999:blog-7420348795193572452024-03-06T00:40:39.891-05:00Acromegaly and MeJulie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.comBlogger31125tag:blogger.com,1999:blog-742034879519357245.post-69885713603441283752014-05-13T01:07:00.002-04:002014-05-13T01:10:22.450-04:00Dynamic contrast-enhanced MRI <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYtD6zxPANocFq2Ch_TeEsiVB0WLjdxbJWM6S3HUxU9u89XlwTl3Q74xOwqsWZvPAc13LNxI_3INauGv7BEjLJEjFcx7grznY3c1vwVk2c6fGWZ-I2iLv9EKelvZXeG_YaQezRGZ3XhRUN/s1600/220px-Toronto_Western_Hospital_(Krembil_Neuroscience_Centre).jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYtD6zxPANocFq2Ch_TeEsiVB0WLjdxbJWM6S3HUxU9u89XlwTl3Q74xOwqsWZvPAc13LNxI_3INauGv7BEjLJEjFcx7grznY3c1vwVk2c6fGWZ-I2iLv9EKelvZXeG_YaQezRGZ3XhRUN/s1600/220px-Toronto_Western_Hospital_(Krembil_Neuroscience_Centre).jpg" /></a><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
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<span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">My husband and I finally travelled to Toronto today. To and from home, it was about 10 hours in the car. It was a draining day but sunny. Met with Dr. Gentili and his team. Overall, the appointment was positive (my husband's words). I was trying to think positive because at this stage of the game I am so damn fed up. I was going into this appointment determined NOT to have another MRI and have a "yes I will operate or no I will not" kind of appointment. Well, you think I would get the drill by now...off I go for another MRI. Dr. Gentili is sending me for a Dynamic contrast-enhanced MRI (which I have never had in the past). He has requested these </span><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">images and stated his reasons very clear. They do make me more comfortable. He needs these before he makes his final verdict on possible surgery again?. He did explain that he does not go in blind and needs a target. I get that. Also, my pituitary is intact (which I want it to stay that way). He also went on to say that he does want remission for me YAY (what does that entail?!?!). So, now I wait for my MRI appointment and a follow-up visit with him (all in Toronto). Wait, wait, wait, is what I do. </span></div>
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<span style="font-family: Arial;">Thinking of you all,</span></div>
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<span style="font-family: Arial;">Julie</span></div>
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Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com8tag:blogger.com,1999:blog-742034879519357245.post-41558902397506659832014-03-28T14:06:00.000-04:002014-03-28T14:06:03.339-04:00COMPLETE BREAKDOWN...But Not Giving Up!!!<span style="font-family: Arial, Helvetica, sans-serif;">I have not had surgery. It has been a very draining wait. I’m still off work
and am now waiting to meet a new Neurosurgeon, <u>on May 12th</u>, in Toronto, Ontario
Canada. I already had a Neuro who was going to do the surgery, but to my
complete surprise, he is not. I did not have any explanation as to why not
either. I had a complete breakdown in his office. I was alone for this
appointment as my husband and I are so used to the routine. We were under the
impression that the appointment was to discuss pre-op, book a date for surgery
etc hence the reason I went alone. Instead, he sent 2 of his fellow residents
to speak with me and they would not stop talking about my bloodwork telling me
that my level were fine. I explained that my recent bloodwork was taken just a
week after my Sandostatin injection. This has been my nightmare since 2006.
The meds don’t last and I get my Acro symptoms creeping back. Boy, was I ever
in a huff and was so confused because I could not understand where all this was
going? At that point, I was shaking and on the verge of tears. I told these
resident doctors that I’ve had my consultations with Dr. Agbi and his fellow surgeon
and they both confirmed that they felt confident to operate. Well, then Dr.
Agbi finally walks in to the room and just looks at me and says...SO! I lost
it. I replied back “so?, what do you mean so???” he then just said to me: “tell
me about your symptoms?” Oh my goodness, I grabbed my coat and purse and was so
in shock. I started to cry and could hardly speak. I just managed to say: “I
don’t want the operation”. What I was trying to say was how could you get my
hopes up? You said you would operate! I just had enough strength to walk out
and while I did, I heard him say: “OK”. </span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">It is still unbelievable to me how, as a patient, you really need to take control. Here I go again. Still not giving up hope. Truthfully, my wish is to not <u>ever</u> be a patient again!!!</span>Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com3tag:blogger.com,1999:blog-742034879519357245.post-18878858000037524972013-12-12T02:41:00.001-05:002013-12-12T02:41:21.131-05:00Timeline Photo<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvOArKulZBKRjw95Ajks8F1c3afR2Gc827zevgmeFJnp2X_UeGfxl7vqyTQwt1vdXq0lwcKEvSszHj_MHWseJqyA0GJlqOEBqRBCQ1Gu1Uob5icLBlkOhlHa1zi_hGLGpdSlh8hvwKfqCn/s1600/Capture.PNG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="208" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvOArKulZBKRjw95Ajks8F1c3afR2Gc827zevgmeFJnp2X_UeGfxl7vqyTQwt1vdXq0lwcKEvSszHj_MHWseJqyA0GJlqOEBqRBCQ1Gu1Uob5icLBlkOhlHa1zi_hGLGpdSlh8hvwKfqCn/s320/Capture.PNG" width="320" /></a></div>
<br />Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com1tag:blogger.com,1999:blog-742034879519357245.post-15966613806659304642013-12-04T09:19:00.000-05:002013-12-04T09:19:07.232-05:00No Radiation For Me (at this point)Had my visit with Dr. Agbi and we both decided that surgery is my best option. No Radiation. The residual tumour is not near the cavernous sinus and is not close to my optical nerve. However, it is near my carotid artery. He is confident about the surgery. I told him that I am concerned about loss of pituitary function (it is always a risk). I must go for more test and meet another Neurosurgeon before we prep for Transsphenoidal surgery again. There is no date scheduled. I am a little apprehensive but believe that this is my best option as medication is not helping me. Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com1tag:blogger.com,1999:blog-742034879519357245.post-62915127492284663172013-11-02T07:47:00.003-04:002013-11-02T07:47:41.350-04:00Rarely Feeling GoodHi fellow followers,<br />
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I'm just wondering if any of you have these following episodes? I just got back from a walk (well 1hour ago) with my son around our block. When we got home I had to go straight upstairs as I was vomiting again and feeling quite dizzy. This has been my "normal" for many years of and on. Does this happen to any of you? I know it is all related to Acro either directly or secondary to it and its meds. I'm trying to feel/be healthy but am usually faced with the above. Now, the way I feel right now will last most of my morning grrrr. Am I alone in this????Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com2tag:blogger.com,1999:blog-742034879519357245.post-27855829322248769642013-10-31T14:17:00.004-04:002013-10-31T14:17:43.019-04:00Surgery Again or Radiation???I've visited my new Endo and am very happy with her. As of today, I am back on Sandostatin. However, I am at a lower dose of 30mg every 4weeks. The Somavert injections were not agreeing with me. I am so relieved to be off of the daily self injections for so many reasons. Now, I am in the "waiting game". I have seen a whole new set of doctors from new Endo and 2 neurosurgeons and 1specialist in Radio. All of whom are part of my new "team". I am so grateful for this. From now until my final decision, I will have a team to work with. I have already had several consultation meetings and am now awaiting my appointment with my neurosurgeon. Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com0tag:blogger.com,1999:blog-742034879519357245.post-16556671182187786332013-09-28T21:14:00.001-04:002013-09-28T21:16:14.225-04:00Somavert daily injectionsI'm sick and tired of this disease and its meds. The daily Somavert injections of 10mg has dropped my IGF-1 levels to a dramatic low of 180 but let me tell you I feel TERRIBLE all the time. I'm nauseated, fatigued, dizzy to mention a few and can not even go for a walk to the corner store without almost passing out and vomiting (literally). I'm being followed with a new Endo and am in the process of meeting another new doctor to consult on Radio hopefully soon. I really think that all these years with the meds have had a toll on my body and mind. I'm still off work (since February) and will continue until all this is sorted out. All I want to do is get back to life with my family and get healthy. Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com1tag:blogger.com,1999:blog-742034879519357245.post-49524464332267613222013-04-04T15:18:00.004-04:002013-04-04T15:18:55.727-04:00New Treatment Plan...I've been off work now for 7 weeks and will continue to be off work while I start my new treatment plan. If this does not work, we are considering Radiotherapy. <br />
I will still be on Sandostatin (lower dose 40mg every 4weeks instead of 60mg) and will be introducing Somavert daily injections starting at the lowest dose 10mg and see how that works???? I really thought that the increase of Sando to 60mg was going to do the trick but sadly no. I have been off work (off and on now) for approximately 4 consecutive years because of my active Acromegaly.<br />
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Hopefully, this time around, with this new treatment plan, I will see/feel long lasting results where I can go weeks/months/maybe years without returning symptoms!!!<br />
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Thinking of all you,<br />
JulieJulie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com5tag:blogger.com,1999:blog-742034879519357245.post-64332728511423977092012-10-21T15:36:00.000-04:002012-10-21T15:36:03.934-04:00MRI machine to arrive in my hometown by December 2012!!!Jenna and I have been happily supporting the fundraising of a new state of the art MRI machine that is slated to arrive in our hometown by the end of 2012. We have been privileged to share our story of Acromegaly in a variety of outlets such as: radiothon; Community Wide Meetings; Publication; and now a video and we are asked to continue being involved. We are doing what we can to contribute to this very important iniative to get this new state of the art MRI machine in our local hospital and to make it even better, we are creating lots of awareness for ACROMEGALY.<br />
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Below is the link to the video...Enjoy:<br />
<a href="http://www.youtube.com/watch?v=ebq2OVoptsM&feature=plcp">http://www.youtube.com/watch?v=ebq2OVoptsM&feature=plcp</a><br />
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Julie<br />
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Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com1tag:blogger.com,1999:blog-742034879519357245.post-59959185387997238232012-10-17T20:58:00.001-04:002012-10-17T20:58:08.630-04:00"Rare diseases are rare, but rare disease patients are numerous" Orphanet<br />
I was so pleased to stumbled across this press release today. I only shared the first paragraph. After clicking a few times, I was pleased to see "Acromegaly" as a documented Rare Disease in their international link. I went ahead and gave my name to ensure that our "Canadian launch of Orphanet" has Acromegaly on their radar. I will keep a close watch for an email response and will keep you posted.<br />
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P.s. I'm still benefiting from my 60mg of Sando every 4 weeks. I go for my IGF-1 bloodwork next week and will discuss the results during my December follow-up appointment with my Endo.<br />
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All the best,<br />
Julie<br />
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<img alt="Orphanet" height="49" src="http://www.orpha.net/consor/cgi-bin/images/logo_orphanet.png" width="230" /><br />
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Orphanet is the reference portal for information on rare diseases and orphan drugs, for all audiences. Orphanet’s aim is to help improve the diagnosis, care and treatment of patients with rare diseases.<br />
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<a href="http://www.orpha.net/consor/cgi-bin/index.php?lng=EN">http://www.orpha.net/consor/cgi-bin/index.php?lng=EN</a><br />
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OTTAWA - The Honourable Leona Aglukkaq, Minister of Health, today announced two initiatives aimed at bringing new hope to Canadians with rare diseases: the Harper Government will create a new approach for the authorization of "orphan drugs" and announced the Canadian launch of Orphanet - a comprehensive database of information and services for rare diseases. <br />
<a href="http://www.hc-sc.gc.ca/ahc-asc/media/nr-cp/_2012/2012-147-eng.php">http://www.hc-sc.gc.ca/ahc-asc/media/nr-cp/_2012/2012-147-eng.php</a><br />
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<br />Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com0tag:blogger.com,1999:blog-742034879519357245.post-1216699008851056072012-08-07T21:04:00.001-04:002012-08-07T21:04:10.151-04:0060mg of Sandostatin LAR every 4 weeks is working for me!It has now been a couple of months since my new increase and I feel wonderful. Actually, I even stopped taking my blood pressure meds as my BP was too low. When I asked my Endo if there was a recent study that allowed her to increase my dosage she explained that she is just experimenting right now. It is an "old" drug and she is trying to find the right dosage for me. Well, 60mg every 4wks works for me. My GH levels in January 2012 were 4.37 and IGF-1 were 291. After my increase dosage my GH levels dropped dramatically to 1.31 and my IGF-1 level went down a touch to 282. What matters to me is not so much the numbers but how I feel. For now, we are staying with the new dosage and will have repeat GH and IGF-1 bloodwork in December 2012. My MRI results did not show any signs of growth. Actually, they had difficulties seeing my residual tumour. <br />
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Smiles,<br />
Julie<br />
<br />Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com0tag:blogger.com,1999:blog-742034879519357245.post-70744460643629426992012-04-23T14:17:00.001-04:002012-04-23T14:17:41.779-04:00Dosage Increase and Acro support in my hometown!!!<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCJv6WxZFaVSCtvqxcnsqYL4K7ki2fIwpPglvZ6tilU8hYrViES1SuxMpTAY49RnLyoyHH9T9zWdEwAEEb1Edt7wgpBBxrDOR6_V2M0Yc1KzcssmrJP3O4To2b4hcetfm8GvVmXJywiKwp/s1600/GEDC0352.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" oda="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCJv6WxZFaVSCtvqxcnsqYL4K7ki2fIwpPglvZ6tilU8hYrViES1SuxMpTAY49RnLyoyHH9T9zWdEwAEEb1Edt7wgpBBxrDOR6_V2M0Yc1KzcssmrJP3O4To2b4hcetfm8GvVmXJywiKwp/s320/GEDC0352.JPG" width="320" /></a></div>
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A couple of months ago, I was not feeling well and instinct told me that my GH was up. Bloodwork confirmed my suspicions. I was previously getting 30mg of Sandostatin every 3 weeks and as of last week, my physician increased my dose to 60mg of Sandostatin every 4 weeks. Since my new dosage, I've been feeling amazing. I was also sent for an MRI and am now awaiting results -hoping that my residual tumour has not grown. For now, I am coping with my new dosage and only working 3 days out of 5. I will visit my Endocronologist in the following weeks to discuss the MRI results and will ask for a repeat IGF-1 bloodwork. In the meantime, my Endo requested that I continue only working short weeks until my results are in from the MRI. I am definitely OK with that.</div>
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On a much brighter note, I had a wonderful visit with a new found "Acro" friend. Jenna has recently moved to my hometown "Cornwall" and through our mutual nurse we have been connected. As you can see, Jenna was diagnosed at the young age of 15 and is now 27 years of age and very beautiful. Our morning together was comforting as we shared our stories with this crazy disease. </div>
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We shall keep in touch for sure and I am blessed to have met this beautiful, well spoken young lady.</div>
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Cheers,</div>
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Julie from Canada</div>Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com4tag:blogger.com,1999:blog-742034879519357245.post-88023361163732749592011-06-13T11:44:00.005-04:002011-06-13T12:04:15.449-04:00September 2011 marks 5 years post surgery<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcoDl4QTW6Hiifx_Do6ZAkORpUu4G8Nxb70hvtoHz-ft_3B9uWLyhMe6lJw5mus7z4995hqjndEuKFrDr3GzF6csXxSRvORsHACYHLLKgVMEjYcALZYezuHsPa7tVbLIb59qH9ofNZ9v3j/s1600/easter2011+%252821%2529.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 320px; FLOAT: left; HEIGHT: 214px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5617734565214066194" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcoDl4QTW6Hiifx_Do6ZAkORpUu4G8Nxb70hvtoHz-ft_3B9uWLyhMe6lJw5mus7z4995hqjndEuKFrDr3GzF6csXxSRvORsHACYHLLKgVMEjYcALZYezuHsPa7tVbLIb59qH9ofNZ9v3j/s320/easter2011+%252821%2529.jpg" /></a><br /><br /><div><br /><br /><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLTFANRwvy_OM2G14RgwN-UQcSYXCWXrZQiztCMib8DR8NBBqiobcb4iFYuq9B9VnELs1-EFXseUqa03a4bBFBck8wcrf7bubFARrXHACFDc3IpFZHk3WzoEXaK5EgssDChgaeqIZLMqgp/s1600/easter2011.jpg"></a><br /><div><br /><br /><br /><br /><br /></div><br /><div>Haven't posted in a while. Being a mother to 2 children keeps things very busy. Overall, my health has been good. I have been back on my Sandostatin injections every 3 weeks (20mg) right after the birth of my daugther (Aug 2010). My IGF-1 levels have been dropping and returning to normal. Wow, was looking for a picture to post of my family and could only find a christmas picture. I will use this picture taken at Easter of my daughter and I and will update hopefully soon (hehe). </div><br /><div><strong>IGF-1 results:</strong></div><br /><div>March 2010: 251</div><br /><div>April 2010: 210</div><br /><div>July 2010: 307</div><br /><div>August 2010: 518</div><br /><div>Sept 2010: 447</div></div><br /><div><br /><div>Jan 2011: 275</div><br /><div>April 2011: 254</div><br /><div></div><br /><div>Happy summer and best of health to you!</div></div>Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com4tag:blogger.com,1999:blog-742034879519357245.post-79302179081539621952010-12-04T19:50:00.003-05:002010-12-04T20:08:41.763-05:00<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNgJ48UHwV9aA3r82vWd7mvBbJOgXGf0xSWbWK3beoW1ks48HU_Xwy_7eu-yad1LBcSL6N_70whCPDan5e4EbgQVtctR6vrX5SCS31j_TiW08TwNTucZwHOr1IBuUksjMAUCtAeOtJRUGG/s1600/IMG_0611+%25287%2529.JPG"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 320px; FLOAT: left; HEIGHT: 214px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5546994765486337234" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNgJ48UHwV9aA3r82vWd7mvBbJOgXGf0xSWbWK3beoW1ks48HU_Xwy_7eu-yad1LBcSL6N_70whCPDan5e4EbgQVtctR6vrX5SCS31j_TiW08TwNTucZwHOr1IBuUksjMAUCtAeOtJRUGG/s320/IMG_0611+%25287%2529.JPG" /></a><br /><div><span style="color:#666666;">Me with my kids. Time flies with 2. Sydney is great. We have lot of fun together. She is going to be 4 months on December 19th. Devon just adores his sister. He is a great big brother and loves to help. </span></div><div><span style="color:#666666;">I did receive results of my last IGF-1 tests: August was a reading of: 518 and September was: 447. I was just at the Lab this week for another IGF-1 blood test to see if my levels are going down? They are still quite high for me. Pre pregnancy, my levels were in normal range, around the 200. I'm also scheduled for my MRI on Tuesday December 7th. I'm looking forward to the results. I'm still experiencing certain symptoms and hope that it will be rectified once my levels are stablized. Once I get my latest IGF-1 results and the results of the MRI, I will be scheduling an appointment with the Endocronologist in Montreal to discuss maybe increasing my Sando for a while until I'm back on track. </span></div><div><span style="color:#666666;"></span> </div><div><span style="color:#666666;">The holidays are fast approaching. May you all have a wonderful Christmas with your loved ones.</span></div>Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com4tag:blogger.com,1999:blog-742034879519357245.post-14996540903598211272010-09-27T20:15:00.003-04:002010-09-27T20:29:12.427-04:00Private Nursing Services Arranged...YIPEE<span style="font-size:85%;color:#666666;">Great news, within only 2 weeks of filling out the Enrollment Forms, I was set up with a wonderful Nurse who comes to my home to give me my Sandostatin injections...all FREE of charge thanks to Access Sandostatin. The program also involves follow-up phone calls, assessments and replacement drugs if the nurse should happen to damage the vial. </span><br /><span style="font-size:85%;color:#666666;">Another great thing about this program is I will have the pleasure of having the same nurse administer my Sando. These nurses have had intense training on properly administering the drug. </span><br /><span style="font-size:85%;color:#666666;">I, along with my family, are so thankful for this wonderful service. I've been spreading the news...local pharmacy, family doctor ....</span><br /><br /><span style="font-size:85%;color:#666666;">Julie</span>Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com2tag:blogger.com,1999:blog-742034879519357245.post-46423062098007575212010-09-07T08:13:00.005-04:002010-09-24T08:05:52.850-04:00Access Sandostatin LAR ~ FREE program for Acromegalics<span style="font-family:arial;">I am pleased to write that after a stressful search for a nurse to administer my Sandostatin injections, my Endocronologist shared with me (which she herself just find out about this program) that the company who makes the drug supplies FREE nursing services all across Canada!!!! </span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">I called and inquired and shared my story. The representative was very warm and understanding and very efficient on the phone. She explained that my physician needs to fill out the enrollment forms and I should hear back from them immediately. I called my Endo's office (once again it is the patient who does all the leg work), gave the great news to her secretary, and explained that the doctor must request access to the program and fill-out paperwork. I will give it a good 2 to 3 weeks for both my Endo and Novartis to get back to me. If I do not hear back from either of them, I will call my Endo's office. The patient must always be on top of things. </span><br /><span style="font-family:arial;font-size:85%;"></span><br /><span style="font-family:arial;color:#ff0000;">Access Sandostatin LAR Program</span><br /><span style="font-family:arial;color:#ff0000;">1-866-281-4688</span><br /><span style="font-family:arial;color:#ff0000;">*This program provides free nursing and financial services for individuals</span><span style="font-family:arial;color:#ff0000;"> who use the medication Sandostatin. For example a person diagnosed with Acromegaly. </span>Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com2tag:blogger.com,1999:blog-742034879519357245.post-46925049876571163962010-08-24T07:08:00.008-04:002010-08-24T07:30:24.021-04:00Now a family of 4<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgwDpFoO3xIXcY_EO1t5cTt9hRTqocOmByUvlXSKzOueCIwsNi65lwsok2RlMACzjrPvzGj13bOt4DHDL1Lakm3ZbmK83XdYuxKn-6HuwSfPJADU7nlXxBWpG6IlsTtV9wtxsLn6JF6pEjz/s1600/DSC04991.JPG"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 320px; FLOAT: left; HEIGHT: 180px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5508932940781810034" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgwDpFoO3xIXcY_EO1t5cTt9hRTqocOmByUvlXSKzOueCIwsNi65lwsok2RlMACzjrPvzGj13bOt4DHDL1Lakm3ZbmK83XdYuxKn-6HuwSfPJADU7nlXxBWpG6IlsTtV9wtxsLn6JF6pEjz/s320/DSC04991.JPG" /></a><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWZ9GPkJiX9OtRyI4p5eKNh5EX1xWkEayajmm-PR7mnxZZPeExBVF_uykuDB6CvnplsqQTyaMB80FbrObmpO70vBqrfBCcPfv-VEHAGz5s2jbq_BPxyXRxlR-kqIVFa5O1jN1hI5mIFN79/s1600/DSC05021.JPG"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 320px; FLOAT: left; HEIGHT: 180px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5508932870335956274" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWZ9GPkJiX9OtRyI4p5eKNh5EX1xWkEayajmm-PR7mnxZZPeExBVF_uykuDB6CvnplsqQTyaMB80FbrObmpO70vBqrfBCcPfv-VEHAGz5s2jbq_BPxyXRxlR-kqIVFa5O1jN1hI5mIFN79/s320/DSC05021.JPG" /></a><br /><br /><div><br /><br /><div><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1a1HqhOHDJAr8wMBGsOB71alX6YTM_MdzmCCttA-cIgerflIzfYpa-KJprwcNqsG5ljBTDfPW51QPdtm2Ml8vgsf-d9lgMSoMvc1J_wWb-6Dx47YTWRInXfpyIFY5yOI9nK8SYV0MlDPo/s1600/DSC05021.JPG"></a></div></div><br /><br /><br /><br /><div></div><div><span style="font-family:arial;color:#666666;">Sydney was born on Thursday August 19th, 2010 at 8:34pm. She is very healthy and a great baby. We are all happy to be home and enjoying our time as a family of 4. Labour was intense and now I am in the process of healing and have an appointement today to receive my Sandostatin injection (yipee). I am anxious to get the benefits and start feeling better. As I mentioned in my last post, I was experiencing Acro symptoms -snoring, sore jaw, bizarre sensations in my head and trouble sleeping just to mention a few. However, with pregnancy, my symptoms were 10x worse. As a result, I am bottle feeding and cannot breastfeed. Mom needs to be at her best to care for her children!</span></div><div><span style="font-family:Arial;color:#666666;"></span></div><div><span style="font-family:Arial;color:#666666;">I have asked my family doctor to administer my injection as I am still in the process of seeking a private nurse. My Insurance Company has sent me the paper work for my Endo to fill-out. After speaking to a representative from my Insurance Company, my chances of being accepted are good. In the meantime, I hope to have my family doctor keep administering until this is all sorted out. Kinda sad when the patient is the one who has to be her best advocate.</span></div><div><span style="font-family:Arial;color:#666666;"></span></div><div><span style="font-family:Arial;color:#666666;">All the best,</span></div><div><span style="font-family:Arial;color:#666666;">Julie</span></div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1a1HqhOHDJAr8wMBGsOB71alX6YTM_MdzmCCttA-cIgerflIzfYpa-KJprwcNqsG5ljBTDfPW51QPdtm2Ml8vgsf-d9lgMSoMvc1J_wWb-6Dx47YTWRInXfpyIFY5yOI9nK8SYV0MlDPo/s1600/DSC05021.JPG"></a></div></div></div>Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com4tag:blogger.com,1999:blog-742034879519357245.post-55381425938689339972010-08-06T13:03:00.008-04:002010-08-06T13:31:48.278-04:0038 weeks pregnant<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhYX9xFJTJmzs9rK7yie43zfOtF7TSVEfTwDHX5Nm86OnjEOqSwPCRhmA3w8xAn1i0GtW9EPIwlF_zLkGKpGIZTcCajuZI5U8thPoKeGs0PYOOa2g5P7e5UOxiUdz52paAsH3MMtmYiDgYr/s1600/38+weeks+pregnant.JPG"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 240px; FLOAT: left; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5502343926969199506" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhYX9xFJTJmzs9rK7yie43zfOtF7TSVEfTwDHX5Nm86OnjEOqSwPCRhmA3w8xAn1i0GtW9EPIwlF_zLkGKpGIZTcCajuZI5U8thPoKeGs0PYOOa2g5P7e5UOxiUdz52paAsH3MMtmYiDgYr/s320/38+weeks+pregnant.JPG" /></a><br /><div><span style="font-size:85%;color:#666666;">Been experiencing contractions but not often enough to head down to the hospital. I am still vomiting and am now feeling more Acro symptoms ie. swollen eye lids, bizarre sensation in my head just to name a few as other symptoms are also related to the pregnancy ie. swollen lips, hands, feet...just lovely hehe.</span></div><div><span style="font-size:85%;color:#666666;"></span></div><div><span style="font-size:85%;color:#666666;"><strong><em>Results of IGF-1 during pregnancy:</em></strong></span></div><div><span style="font-size:85%;color:#666666;">Mar 3rd/2010- 251 ug/l & GH results 1.66</span></div><div><span style="font-size:85%;color:#666666;">Apr 19th/2010- 210 ug/l</span></div><div><span style="font-size:85%;color:#666666;">Jul 5th/2010- 307 ug/l</span></div><div><span style="font-size:85%;color:#666666;">Augt 5th/2010- pending</span></div><div><span style="font-size:85%;color:#666666;"></span></div><div><span style="font-size:85%;color:#666666;">As a result of my IGF-1 going up it was decided that I will resume my Sandostatin treatment every 3weeks starting mid-september and not wait for the August 5th bloodtest as it takes 1 month for results. I will at least have a few weeks to breastfeed. My husband and I are really ok with the decision as I do not want to fall sick again because I need all my strength to care of our newborn.</span></div><div><span style="font-size:85%;color:#666666;"></span></div><div><span style="font-size:85%;color:#666666;">I also was told that I am no longer able to use our local clinic to receive my injections. It is no longer in their mandate to offer clients with intramuscular injections that service (I am very very disappointed with that news). They want a family member/friend to inject me (totally out of the question!) or that I pay for a private nurse in that case I can use the clinic. I am in the midst of trying to find the best possible option for me and hopefully the service will be covered by my insurance company. I will keep you posted both with the birth of our daughter and my search for a nurse. </span></div><div><span style="font-size:85%;color:#666666;"></span></div><div><span style="font-size:85%;color:#666666;">All the best,</span></div><div><span style="font-size:85%;color:#666666;">Julie</span></div><div><span style="font-family:Arial;font-size:85%;"></span></div><div><span style="font-family:Arial;font-size:85%;"></span></div>Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com3tag:blogger.com,1999:blog-742034879519357245.post-13595493467200588692010-04-04T18:43:00.002-04:002010-04-04T18:56:07.703-04:005 Months Pregnant<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsxl_ZcuvaBIM3tBFbazvZmGHLJmXnfiu8g5H-XYFx0l0UHR8yC-ZvZindB0j8vW7AMuFykJDmEWN89ikiNAe3Yv2RURSjgBJKrOMxoK2oJJ6qGUnRZ_wvoGX0IHnzFlRDzd7UuM4aADgS/s1600/5+months+pregnant+2010.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 240px; FLOAT: left; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5456417370472869826" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsxl_ZcuvaBIM3tBFbazvZmGHLJmXnfiu8g5H-XYFx0l0UHR8yC-ZvZindB0j8vW7AMuFykJDmEWN89ikiNAe3Yv2RURSjgBJKrOMxoK2oJJ6qGUnRZ_wvoGX0IHnzFlRDzd7UuM4aADgS/s320/5+months+pregnant+2010.jpg" /></a><br /><div><span style="font-size:85%;"><span style="color:#666666;">5 months pregnant and counting</span><span style="color:#666666;">. I have been quite ill throughout and am now off work until the delivery of our daughter in mid-August. </span></span><span style="font-size:85%;"><span style="color:#666666;">I still wake up and cannot believe that I am still pregnant. I just can't wait to see her. </span></span></div><div><span style="font-size:85%;color:#666666;"></span> </div><div><span style="font-size:85%;color:#666666;">I'm being followed quite closely with both my Obstetrician and my Endocronologist. They both have been very attentive to my pregnancy and the fact that I have Acromegaly. </span></div><div><span style="font-size:85%;color:#666666;"></span> </div><div><span style="font-size:85%;color:#666666;">Happy Easter,</span></div><div><span style="font-size:85%;color:#666666;">Julie</span></div>Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com8tag:blogger.com,1999:blog-742034879519357245.post-77714625419411219032010-01-25T20:20:00.008-05:002010-04-04T18:58:30.272-04:00January 25th, 2010 ~10 weeks and 4 days pregnant and counting...<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCwSAyELM-4y7Edi50PEevno7zhg5gYyzjEGO3CjE8pUHwLsjt0nmt7pKDJlllQggNg31F6iT06hsBco-4ANob6gE5nj85PjZvdT1hJQ7wdM2FlVF2nUEIdPWVfJ0K_MV4Rd8O84w0igZ1/s1600-h/header.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 288px; FLOAT: left; HEIGHT: 216px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5430855544273770562" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCwSAyELM-4y7Edi50PEevno7zhg5gYyzjEGO3CjE8pUHwLsjt0nmt7pKDJlllQggNg31F6iT06hsBco-4ANob6gE5nj85PjZvdT1hJQ7wdM2FlVF2nUEIdPWVfJ0K_MV4Rd8O84w0igZ1/s400/header.jpg" /></a><br /><div><br /><div><span style="font-size:85%;color:#666666;">On December 17th, 2009, I found out that I was pregnant. Could it be true after 6 miscarriages in 5 years??? Well, it was confirmed with a blood test. </span><span style="font-size:85%;color:#666666;">I knew that I had to stop my Sandostatin and Diovan ASAP and call my Endocronologist. </span></div><br /><div><span style="font-size:85%;color:#666666;">Here I am today, full of nausea, fatigue and Acro symptoms already. My eye lids are slowly swelling, my nose is enlarging and my jaw and joints crack daily. It is all worth it though. The residual tumour will be monitored by Visual Field testing at the Optomotrist (No MRI for me) and lots of bloodwork. The baby is fine at this time. I had an early Ultrasound and the heart was beating and everything else was were it was suppose to be. My next Ultrasound is on Feb 10th. </span></div><br /><div><span style="font-size:85%;color:#666666;"></span></div><div><span style="font-size:85%;color:#666666;">My husband and I are still cautious but really hope that I carry through my 9 months!!!</span></div><br /><br /><div><span style="color:#333333;"></span></div><br /><br /><div><span style="color:#333333;"></span></div></div>Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com4tag:blogger.com,1999:blog-742034879519357245.post-28323217812477212652009-08-22T21:00:00.011-04:002009-08-22T21:56:46.640-04:00IGF-1 results from March 30th, 2009<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1tp03qLloYmNdUsH1_8CUVxw2fFnBG_nnKvzpSl-pSvY_xjVTDDdWzWNgIR1o5lW1hVxio_sMGsYEpdPbaI87P3UIx7IP4850ogYxyUzY4X1iUaEjzAQK9Im_lms7Gux_g9hAAJAUGm0a/s1600-h/intramuscular_injection.jpg"><img id="BLOGGER_PHOTO_ID_5372965045963522274" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; WIDTH: 320px; CURSOR: hand; HEIGHT: 320px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1tp03qLloYmNdUsH1_8CUVxw2fFnBG_nnKvzpSl-pSvY_xjVTDDdWzWNgIR1o5lW1hVxio_sMGsYEpdPbaI87P3UIx7IP4850ogYxyUzY4X1iUaEjzAQK9Im_lms7Gux_g9hAAJAUGm0a/s320/intramuscular_injection.jpg" border="0" /></a><br /><div><div><span style="font-family:arial;color:#333333;">Ok, you are probably wondering...why this picture??? I will explain in a minute. First things first. My IGF-1 results since the beginning of 2009: </span></div><div><span style="font-family:arial;color:#333333;">March 10th, 2009- 307 ug/l</span></div><div><span style="font-family:Arial;color:#333333;">March 30th, 2009- 254 ug/l</span></div><br /><div><span style="font-family:Arial;color:#333333;">As you can read, my levels are better since I started receiving my Sando every 3 weeks and I do feel better since the new treatment plan which began in January 2009. </span></div><div><span style="font-family:Arial;color:#333333;"></span></div><br /><div><span style="font-family:Arial;color:#333333;">On another note, I have not been feeling well for quite some time with the following symptoms: extreme fatigue in late afternoon, swelling of both legs/feet, extreme redness on my face; arms and knees, blurred vision, difficulties concentrating and shortness of breath. All of the above started about 3 months ago. Boy, did it ever effect my work. I visited my Endo in Montreal thinking it was Acro related and was told it was probably nothing... Here we go again. Well, I also visited my family doctor "often" with the abovementioned symptoms and finally, he told me to show up at his office as soon as the symptoms appeared. Well, the next couple of days I was right back in his office. He looked me over and explained that he was not sure what to make of it thus asking me to return for an appointment so we could discuss bloodwork. I was sent for another IGF-1 test and Cortisol test- I am still waiting for results. However, on that same day, I also stopped taking my Adalat blood pressure medication to see if that was the cause. Well, 2 days later I had no symptoms and when a week went by and I returned for a follow up appointment we realized that I had severe reactions from that medication. In the end, I was relieved it was not Acro related but am still looking forward to my IGF-1 results which I should get back in 2 weeks. It takes 5 weeks for the results as it is a special test. I am back taking Diovan to control my BP levels. I had stopped since we were trying to conceive (without any luck though). Anyways, Diovan is the best med so far for me without any side effect.</span></div><div><span style="font-family:Arial;color:#333333;"></span> </div><div></div><div><span style="font-family:Arial;color:#333333;">Now, the reason <em>behind</em> (ha ha) my picture is to also share that I experienced something a little traumatic during my previous Sandostatin injection appointment last month. The injection was not given in the right area. I tried my best to give accurate arrows of my experience with the picture. Basically, it was given WAY TOO close to my spinal cord. Let me tell you, did I ever scream when being injected. I was shocked to say the least. I turned around to look at the nurse who then began to cry. I immediately told her that that is not the area for my injection (very politely). She did not know what to say but as I was returning to a "less" shocking state, I realised that she realised her mistake. I consoled her (yes, I consoled her) and left the clinic to talk to the secretary to explain in short what happen and to take care of the nurse. A day later, my foot was numb and I had the weirdess sensations. When I returned to the clinic 3 weeks later, I asked to speak with the Manager and explained my concerns (by the way, no one called me to check up on me). I wanted to make sure that this does not happen again. I wanted a clearer explanation of proper procedures when errors are made. I did not want the system to </span><span style="font-family:Arial;color:#333333;">blame the nurse but to correct their methods if such a mistake is made. On that day, we found a smaller less invasive needle. I also got a crash course from my family doctor who showed me where the needle goes and to speak up if I feel they are about to inject in the wrong spot (in hindsight right). I truly feel that I will have to write a letter to the the head of the company (which I have neglected to do yet) to ensure it never happens again. I'm told that any needle given in that area so close to the spinal cord is dangerous...I knew that already.</span></div><div><span style="font-family:Arial;color:#333333;"></span></div><div><span style="font-family:Arial;color:#333333;"></span> </div><div><span style="font-family:Arial;color:#333333;">I truly hope everyone is keeping well. All I know is that I still have to be a strong advocate for me and it has been 3 years post-op. Boy it can be exhausting. However, w</span><span style="font-family:Arial;color:#333333;">hen you know there is something just not right don't just give in to the medical gods. They are human after all.</span></div><div><span style="font-family:Arial;color:#333333;"></span></div><div><span style="font-family:Arial;color:#333333;"></span> </div><div><span style="font-family:Arial;color:#333333;">Health and happiness,</span></div><div><span style="font-family:Arial;color:#333333;">Julie</span></div><br /><br /><div></div></div>Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com5tag:blogger.com,1999:blog-742034879519357245.post-75757868734838929752009-04-05T12:54:00.003-04:002009-04-11T07:53:56.359-04:00IGF-1 test results<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhhl_9DWMoEd7ICia6h29r_fpppQ2qe6-r3n_D0OK_L_WF-P2yVJYUBXErnFX0RnxB-CA7muiVzdNgkEEGIIr0GdnkDc4FGVDub64ksaPVR56Gmybfy5J2Hhv4Zj3gBlc5pshQMR5dQFBz9/s1600-h/sandostatin_18547_5_(big)_.jpg"><img id="BLOGGER_PHOTO_ID_5321252471086340322" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; WIDTH: 232px; CURSOR: hand; HEIGHT: 320px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhhl_9DWMoEd7ICia6h29r_fpppQ2qe6-r3n_D0OK_L_WF-P2yVJYUBXErnFX0RnxB-CA7muiVzdNgkEEGIIr0GdnkDc4FGVDub64ksaPVR56Gmybfy5J2Hhv4Zj3gBlc5pshQMR5dQFBz9/s320/sandostatin_18547_5_(big)_.jpg" border="0" /></a><br /><span style="font-family:arial;font-size:85%;color:#666666;">Update:</span><br /><span style="font-family:arial;font-size:85%;color:#666666;">January 28th, 2009 I had my first 3 week 20mg Sando injection.</span><br /><span style="font-family:arial;font-size:85%;color:#666666;"></span><br /><span style="font-family:arial;font-size:85%;color:#666666;">January 29th, 2009 visit with the High Risk pregnancy team in Ottawa, Ontario to discuss reasons behind my many miscarriages. As my blood pressure is very high, they wanted me back on meds to control it. I had lots of bloodwork done and a 24hr Urine test... all results returned normal. My BP was on average 160/101. I was on Labelatol 200mg 3pills a day for a while but I had to stop taking those meds b/c of too many side effects. After several doctor visits, I am now ok with Adalat XL 60 mg once a day and 1/2 tablet of Hydrochlorothiazide at 25mg. </span><br /><span style="font-family:arial;font-size:85%;color:#666666;"></span><br /><span style="font-family:arial;font-size:85%;color:#666666;">March 10th, 2009 IGF-1 blood test in Montreal. </span><br /><span style="font-family:arial;font-size:85%;color:#666666;"></span><br /><span style="font-family:arial;font-size:85%;color:#666666;">March 30th, 2009 returned to Montreal for my 2nd IGF-1 blood test. During that appointment, the nurse informed me that my results from March 10th were in. My IGF-1 dropped to 305 as compared to my IGF-1 results in November 2008 which was 352. So, these results show that indeed receiving my Sando every 3weeks instead of every 4weeks is dropping my GH levels. I also feel better since I started my 3 week injections. I don't feel Acro symptoms like I did when I was getting my 4 week Sando. I would feel Acro symptoms after 2-3 weeks of receiving my injection. What I find also helps me (today) is that my BP levels are ok (129/85) but my doc still wants it to be lower. </span><br /><span style="font-family:Arial;font-size:85%;color:#666666;"></span><br /><span style="font-family:Arial;font-size:85%;color:#666666;">My next visit in Montreal is May 19th, 2009. I should get my 2nd IGF-1 results on that day. I hope that it dropped even more. The normal for my age/gender is between (100-320).</span><br /><span style="font-family:Arial;font-size:85%;color:#666666;"></span><br /><span style="font-family:Arial;font-size:85%;color:#666666;">Happy Spring!</span>Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com7tag:blogger.com,1999:blog-742034879519357245.post-61330429126098331682009-01-14T18:19:00.005-05:002009-01-14T19:14:51.326-05:002008- Updates<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgqyO067Pk60cpfoRRsDS2qpbjO-1_buda7TnxuZxWHnPv7hPGq3yRPpdF3Ocfs3UhR91HsWOYIDKOVVJytPGRa0b0DP1OOkbf1RZ9mCJp03ekSwv2gtYj7RSds0nAdSn3iS4ogjl7EcCoH/s1600-h/Christmas+2008.JPG"><img id="BLOGGER_PHOTO_ID_5291293309914424242" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; WIDTH: 320px; CURSOR: hand; HEIGHT: 240px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgqyO067Pk60cpfoRRsDS2qpbjO-1_buda7TnxuZxWHnPv7hPGq3yRPpdF3Ocfs3UhR91HsWOYIDKOVVJytPGRa0b0DP1OOkbf1RZ9mCJp03ekSwv2gtYj7RSds0nAdSn3iS4ogjl7EcCoH/s320/Christmas+2008.JPG" border="0" /></a> <span style="font-size:85%;color:#666666;">Another Christmas has gone by. What a year it has been. My son will be 6 in September and my husband and I are amazed at how time flies. Now, back to my Acromegaly. Overall, I have been feeling better but I am still experiencing episodes were I swell and feel terrible. I have been monitoring the weeks when I do not feel great and it always ends up the week and sometimes two weeks before I am due for my Sandostatin injection. I have been sharing my concerns with my medical team and finally after my IGF-1 test was taken in November 2008 the results show that my GH levels are slightly high (352). Instead of receiving my Sando injection (20mg) every 4 weeks, I will start receiving them every 3 weeks at the same dose to see if there is a decrease in my GH levels. My new treatment plan should commence end of January 2009. I can't wait!!!</span>Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com6tag:blogger.com,1999:blog-742034879519357245.post-33635530160568027842008-12-20T19:35:00.005-05:002008-12-27T16:53:35.893-05:002007 - One year after my pituitary surgery<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEivX5N9Ohg1Swn-ZyJhLfqYUxBEwh-RFG1FJytJoNwG1rFl7KudjlXKpuWTRZqD7W7QoU9HOWBJBBin13gac6LUbVi0zxBpqDxjLdDGOqU9Bv-wVjvnztR6z7pSbGVml3HLdRBiU31pNQW-/s1600-h/family.JPG"><img id="BLOGGER_PHOTO_ID_5282038148333266242" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; WIDTH: 320px; CURSOR: hand; HEIGHT: 240px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEivX5N9Ohg1Swn-ZyJhLfqYUxBEwh-RFG1FJytJoNwG1rFl7KudjlXKpuWTRZqD7W7QoU9HOWBJBBin13gac6LUbVi0zxBpqDxjLdDGOqU9Bv-wVjvnztR6z7pSbGVml3HLdRBiU31pNQW-/s320/family.JPG" border="0" /></a>(<span style="font-size:85%;color:#666666;">Picture taken Christmas 2007)</span><br /><span style="font-size:85%;color:#666666;">I was 2 months pregnant and miscarried on Christmas Eve 2007. </span><span style="font-size:85%;color:#666666;">To date <span style="font-size:78%;">(Dec 2008),</span> I have had four miscarriages. I am visiting the High Risk clinic in Ottawa, Ontario Canada inthe new year to understand the reasons for my miscarriages. </span><br /><div><span style="font-size:85%;color:#666666;">I am back taking my Sando once a month. When I was pregnant I had to stop my medication. Because there is not much research on the long term effects of Sandostatin and pregnancy, it is recommended by my Specialist Dr. Serri from Montreal, Quebec Canada that I stop taking my meds. I was being monitored very closely to ensure that my growth hormone would not spike and that my residual tumor would not grow. All in all, our spirits are good. We will just see what happens next.<br /></div></span><br /><div></div>Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com4tag:blogger.com,1999:blog-742034879519357245.post-32839812144957827242008-12-16T21:00:00.003-05:002008-12-20T19:19:20.659-05:002006- Post surgery<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjR5c_hq-2ijlCaR_jRNhdkPworSaFhYSpika8Wl1PtGfpa5Qw-5r_tcfC2HVEAypiKKFfGtOy07o6T3NBiGCLIDDWgTV-Ji3VYsno2WdcXyeMWtReNxkvCWz-H8eOtknoxeirUzAR3FQ9U/s1600-h/bday.JPG"><img id="BLOGGER_PHOTO_ID_5280524927755235762" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; WIDTH: 320px; CURSOR: hand; HEIGHT: 240px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjR5c_hq-2ijlCaR_jRNhdkPworSaFhYSpika8Wl1PtGfpa5Qw-5r_tcfC2HVEAypiKKFfGtOy07o6T3NBiGCLIDDWgTV-Ji3VYsno2WdcXyeMWtReNxkvCWz-H8eOtknoxeirUzAR3FQ9U/s320/bday.JPG" border="0" /></a><br /><div align="left"><span style="font-size:85%;color:#666666;">(Picture was taken one week after my pituitary surgery) I was so anxious to be home to celebrate my son's 3rd b-day. </span></div><div align="left"><span style="font-size:85%;color:#666666;">I started noticing subtle changes...my face and my tongue felt less swollen, my acne cleared completely and my snoring ceased immediately. Although, my nose stayed quite large for a couple of weeks because of the nasal packing. Upon my return home I noticed clear fluid leaking from my nose. I had to be rushed back to Toronto the following day to ensure that I did not have spinal leakage. After 1 full night and no other episodes of leaking, I discharged myself and returned home. (what a nightmare)</span></div>Julie S.http://www.blogger.com/profile/00177725669562224200noreply@blogger.com0