(Picture taken Christmas 2007)I was 2 months pregnant and miscarried on Christmas Eve 2007. To date (Dec 2008), I have had four miscarriages. I am visiting the High Risk clinic in Ottawa, Ontario Canada inthe new year to understand the reasons for my miscarriages.
I am back taking my Sando once a month. When I was pregnant I had to stop my medication. Because there is not much research on the long term effects of Sandostatin and pregnancy, it is recommended by my Specialist Dr. Serri from Montreal, Quebec Canada that I stop taking my meds. I was being monitored very closely to ensure that my growth hormone would not spike and that my residual tumor would not grow. All in all, our spirits are good. We will just see what happens next.
4 comments:
Julie,
May I wish you the best of health, and hope that you will be heavy with child soon. I've quite recently been diagnosed with Acromegaly, with a macroadenoma, and I'm currently awaiting treatment. We're trying or children too.
Hope all goes well, keep us posted. I've added you to my list of other people who blog on acromegaly in my Acromegaly Diary too.
Trys
Trys,
Thanks again for your message.
I wrote on your blog today and I hope that my message was sent. I am still finding it challenging to navigate my blog and set it up the way I want. I will be seeking advice from a few friends of mine who are more comfortable with blogging and I hope to be timely in updating my journey as well. Just a side note, I am thankful that I have benefits to cover my Sandostatin cause it is quite costly at approximately $2000 a shot. I get 20mg every 4 weeks (for 2 years now) but I will be getting my Sando every 3 weeks now.
Thinking of you,
Julie
Hey Julie,
I got your message on my blog - thank you! I'm new to all this blogging too. It's great to be able to share the experience of the condition with others. It really helps.
Here in the United Kingdom, our National Health Service covers all medical bills. It looks like I'm going to be on Sandostatin too very soon.
I'll keep reading your blog - keep writing!
Trystan
Trystan
Wow, that must be so hard to deal with. I'm glad your spirits are staying up despite the challenges, and don't give up!
I always wonder what I would do if I decided to try for children. I guess I might go off the Sando too.
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