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My husband and I finally travelled to Toronto today. To and from home, it was about 10 hours in the car. It was a draining day but sunny. Met with Dr. Gentili and his team. Overall, the appointment was positive (my husband's words). I was trying to think positive because at this stage of the game I am so damn fed up. I was going into this appointment determined NOT to have another MRI and have a "yes I will operate or no I will not" kind of appointment. Well, you think I would get the drill by now...off I go for another MRI. Dr. Gentili is sending me for a Dynamic contrast-enhanced MRI (which I have never had in the past). He has requested these images and stated his reasons very clear. They do make me more comfortable. He needs these before he makes his final verdict on possible surgery again?. He did explain that he does not go in blind and needs a target. I get that. Also, my pituitary is intact (which I want it to stay that way). He also went on to say that he does want remission for me YAY (what does that entail?!?!). So, now I wait for my MRI appointment and a follow-up visit with him (all in Toronto). Wait, wait, wait, is what I do.
Thinking of you all,
Julie
8 comments:
Keeping my fingers crossed for you Julie! Hugs and good luck!
Thanks Jenny. Still no phone call from Toronto to schedule that MRI.
I have been thinking of you and wondering where you were at in treatment. I'm sorry to read about the struggles you've had in getting the right treatment and hope this doctor can help. It can be an arduous journey to find the right doctor sometimes, but hopefully the long distance travel will be worth it.
I hope you are feeling better these days Julie, I came across your blog when I searched acromegaly since I am learning about it in medical school, and girl I was shocked. Your blog contains a wealth of knowledge not only about the disease but also about the healthcare system in general. As a student I am thankful to you for sharing your deeply personal story and I hope you continue writing. I am always amazed how patients know their body better than any medical professional and they know when something isn't write way sooner than any test can detect. I am curious, did you first started feeling the changes after your pregnancy? I am so sorry that our medical knowledge is still so little about many diseases and we can do so little to help patients. What suggestions do you have for a medical professional when dealing with a patient like yourself? I would love to get your perspective.
best wishes
Hi, I'm new in the Acromegaly community. :) I just wanted to pop by and say that I hope everything has worked out just fine for you and acromegaly. I've just learned that I had acromegaly 1,5 months ago and now I'm waiting for my surgery.
Take care!
Thanks for your information. Please accept my comments to still connect with your blog. And we can exchange backlinks if you need.
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